National Support Organizations
Support for Fetal Trisomies (S.O.F.T.)
Phone: (800) 716-SOFT
SOFT is a national nonprofit volunteer organization offering support for parents who have had or are expecting a child with a chromosome disorder (especially Trisomy 18 and Trisomy 13), and education to families and professionals interested in the coare of these children. Support is provided during prenatal diagnosis, the child’s life and after the child’s passing. Support services include: Phone Support, Educational Literature, Website Support Groups, Related Disorder Contacts and Resources, an Annual Family and Medical Conference and a Newsletter.
American SIDS Institute
Includes information on research, a memory page, links to other SIDS sites and bereavement services.
Remembering Our Babies – October 15th
Site devoted to promoting “Pregnancy and Infant Loss Remembrance Day”. Tells you how you can get involved in making your country, your state, your community, your household involved in this important remembrance event. See if YOUR state has agreed to proclaim Remembrance Day… make sure you click to “sign the petition.”
Center for Loss in Multiple Births (CLIMB)
Internet support services for parents throughout the United States, Canada, Australia, New Zealand and beyond who have experienced the death of one or more, both or all of our twins or higher multiples at any time from conception through birth, infancy and childhood.
M.I.S.S. (Mothers In Support and Sympathy)
Is a grass roots organization dedicated to supporting parents one to one after the death of an infant or young child. Referrals to peer contacts and ancillary organizations offered. List of Do’s and Dont’s to help bereaved parents, and a listing of groups and resources in Arizona.
Support with a Christian emphasis for those families whose baby has died, or a subsequent pregnancy after a loss. Links to Bereaved Family Web Pages, other resources, and info about their newsletter and program.